{"id":166,"date":"2024-07-10T10:26:23","date_gmt":"2024-07-10T10:26:23","guid":{"rendered":"https:\/\/clinpharmacolgroup.es\/careintrials\/?p=166"},"modified":"2024-07-10T10:26:23","modified_gmt":"2024-07-10T10:26:23","slug":"biomedicine-deliberative-democracy-and-childhood-the-limits-of-children-and-young-peoples-involvement-in-health-research","status":"publish","type":"post","link":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/2024\/07\/10\/biomedicine-deliberative-democracy-and-childhood-the-limits-of-children-and-young-peoples-involvement-in-health-research\/","title":{"rendered":"Biomedicine, deliberative democracy and childhood. The limits of children and young people\u2019s involvement in health research"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_row column_structure=”1_4,3_4″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/clinpharmacolgroup.es\/careintrials\/wp-content\/uploads\/2024\/04\/nuevo-articulo.png” title_text=”nuevo articulo” _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”4.24.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.26.0″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n

<\/h4>\n
Maria Cristina<\/span>\u00a0<\/span>Murano<\/span><\/a><\/span><\/span><\/span><\/div>\n
<\/span><\/span><\/span><\/span><\/div>\n
Abstract<\/strong><\/div>\n
\n
En los \u00faltimos a\u00f1os, los ni\u00f1os\/as y j\u00f3venes (NYJ) han sido involucrados cada vez m\u00e1s en iniciativas de participaci\u00f3n ciudadana en investigaci\u00f3n e innovaci\u00f3n sanitarias. Tales iniciativas est\u00e1n pensadas para dar voz a los NYJ en estos asuntos. Dado que se debate si la intervenci\u00f3n ciudadana en \u00e1mbito sanitario fomenta los valores de participaci\u00f3n, debate p\u00fablico y toma de decisiones que propone la democracia deliberativa, este art\u00edculo examina tres conjuntos de retos relativos a la implicaci\u00f3n de los ni\u00f1os y j\u00f3venes centr\u00e1ndose en los prejuicios de edad. Tras describir algunas iniciativas existentes, este art\u00edculo examina cr\u00edticamente por qu\u00e9 se involucran a los NYJ, c\u00f3mo se constituye el grupo de NYJ y, a continuaci\u00f3n, investiga el estatus moral de los NYJ en entornos biom\u00e9dicos. En primer lugar, muestra que la justificaci\u00f3n de la participaci\u00f3n de los NYJ es principalmente descendente y adultoc\u00e9ntrica, por lo tanto, plantea cuestiones sobre la posibilidad de colaboraci\u00f3n aut\u00e9ntica en la toma de decisiones. Tambi\u00e9n sugiere que, para garantizar la inclusi\u00f3n democr\u00e1tica, el grupo de los NYJ deber\u00eda constituirse teniendo en cuenta tanto la edad como las consideraciones pol\u00edticas. Por \u00faltimo, indica que, a pesar del creciente reconocimiento de los derechos espec\u00edficos de los ni\u00f1os, las normas socioculturales y la din\u00e1mica de poder en pediatr\u00eda vulneran su estatus moral y desaf\u00edan la igualdad pol\u00edtica. Estos tres conjuntos de consideraciones ofrecen una contribuci\u00f3n te\u00f3rica preliminar para impulsar la legitimidad democr\u00e1tica y la representaci\u00f3n de los NYJ en la investigaci\u00f3n y la innovaci\u00f3n sanitarias.<\/span><\/div>\n
<\/span><\/div>\n
<\/span><\/div>\n
Palabras clave<\/strong> : Participaci\u00f3n p\u00fablica y del paciente, investigaci\u00f3n sanitaria, democracia deliberativa, infancia<\/span><\/div>\n
<\/span><\/div>\n
<\/div>\n
Read more:<\/strong><\/div>\n

Biomedicine, deliberative democracy and childhood. The limits of children and young people\u2019s involvement in health research<\/a><\/p>\n<\/div>\n

<\/span><\/span><\/span><\/span><\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Research Ethics<\/p>\n","protected":false},"author":1,"featured_media":15,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"1080","footnotes":""},"categories":[9],"tags":[],"class_list":["post-166","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-research"],"_links":{"self":[{"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/posts\/166","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/comments?post=166"}],"version-history":[{"count":2,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/posts\/166\/revisions"}],"predecessor-version":[{"id":168,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/posts\/166\/revisions\/168"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/media\/15"}],"wp:attachment":[{"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/media?parent=166"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/categories?post=166"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/clinpharmacolgroup.es\/careintrials\/index.php\/wp-json\/wp\/v2\/tags?post=166"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}